Just tried to book a Scuba diving refresher course, I didn't really think about how the ileostomy might be an issue- if farts fill the bag up it could expand on the way up and blow the bag off...
Need to get signed off by a doctor.
Tuesday, 28 February 2017
Scuba
Monday, 27 February 2017
The train to Koh Tao
You haven't emptied your bag until you've emptied it on a Thai train. But seriously, this was a great experience for me- I learned 3 things.
1. Try to always carry toilet paper with you
2. Experience of using the water hose that they have in Asia (called the 'bum gun' apparently!)
3. I can cope with it and I survived! No need to be anxious about these things any more. (Seriously, when I went to India last year I was so concerned about using the toilets when out and about that I hardly drank any water, probably it could have been quite dangerous)
1. Try to always carry toilet paper with you
2. Experience of using the water hose that they have in Asia (called the 'bum gun' apparently!)
3. I can cope with it and I survived! No need to be anxious about these things any more. (Seriously, when I went to India last year I was so concerned about using the toilets when out and about that I hardly drank any water, probably it could have been quite dangerous)
Side note: Big shout out to sensura mio. I've only changed once so far on the trip- it would be much harder with the old bags I used before
Friday, 24 February 2017
Just changed
I just changed my bag in the communal dorm's shower room. Travelling with an ostomy isn't the easiest thing, especially not when staying in hostels
Keeping cool part 2
Met a kazakh guy at the airport who also hadn't booked a hostel yet, and headed to the Koh San road. Found a place called the green house which looked pretty basic but had a bar and looked friendly. I had topped the medicube up with ice from the plane so I figured I could just keep doing the same with the ice from the bar.
Woke up about 6.30am as I had to empty my bag and I saw the thermometer was reading over 14 degrees. So I might have spoiled all that humira already...
I didn't book a hostel in advance because I read or heard that there is much more choice on the Khao San road than you see on the Internet. I'm now thinking that might have been a mistake and I should have booked somewhere that said it had a fridge freezer as one of the facilities.
I'll do that tomorrow
Woke up about 6.30am as I had to empty my bag and I saw the thermometer was reading over 14 degrees. So I might have spoiled all that humira already...
I didn't book a hostel in advance because I read or heard that there is much more choice on the Khao San road than you see on the Internet. I'm now thinking that might have been a mistake and I should have booked somewhere that said it had a fridge freezer as one of the facilities.
I'll do that tomorrow
Labels:
adalimumab,
Crohn's,
Humira,
IBD,
medication,
travel,
travelling
Thursday, 23 February 2017
Flying to Bangkok
I had a few things to sort out before I left (completely clearing out my flat!) so I'm writing this on the plane to Bangkok! A girl across the way is so drunk (or on something) that she tried to kiss the lady sitting next to me, and is being restrained by the crew, so that's a bit of a distraction...
Below I've put a photo of all the ostomy supplies I've brought with me, there's quite a lot of it and it fills most of my backpack to be honest - not much room left for anything else.
Here is my total packing list for this 62 day trip:
3x asthma inhalers
10 syringes of Humira in the iCool medicube (I suddenly thought when queuing for security that the large frozen packs might be classed as a liquid and not be allowed through but I was relieved when they passed through the machine with no questions)
About 96 tablets of azathioprine
Ostomy supplies:
- 30 x sensura mio 1 piece bags
- 15 x sensura mio 2 piece base
- 30 x sensura mio 2 piece bags
- 20 x oakmed standard bags (these are the ones I used to use and have brought as a safety net)
- 30 x cohesive slims
- 30 x cool plats brava rings
- 60 disposal bags
- 1 pack of dry wipes (I figure I should be able to buy these and they are bulky so I didn't want to bring more)
- 60 x adhesive remover wipes
- scissors
- 3 x 'bed pad' mats
Sunglasses
Sunscreen
Sleeping bag liner
60 pairs contact lenses
Padlock
6 x underwear
5 x socks
3 x comfizz level 1 support band (I wear one of these all the time)
2 x comfizz level 3 hernia support band (includes protective guard for when I'm doing kickboxing training)
1 x stealth belt
Lonely planet guide
Mosquito spray
Trainers
Jogging bottoms (aka sweat pants)
3x shorts
3x tshirts
2x trunks
A sweater
Toothbrush
Toothpaste
Soap
iPad
Earphones
Spare phone battery
Earplugs
Phone charger
GoPro
2 credit cards
Under clothing wallet
Dioralyte
Loperamide
Hand sanitizer
Electric plug adapter
Travel pillow. Although it's quite bulky - I might regret bringing it
Monday, 13 February 2017
Preparing to Leave
Less than 2 weeks before I fly to Thailand!! Super excited (and apprehensive!)
Here's what I've been up to:- Got myself a Thai tourist visa
- My flat is all packed up, all my stuff is in storage
- Lots of goodbye lunches/coffees/drinks with various friends
- Received a very large supplies order, containing my new favourite bags (more below!)
- Asked GP for a large prescription of Azathioprine
- Received a large order of Humira
- Spoken to consultant and stoma nurse
- Tried an improv class
Still to do:
- Get Loperamide and Dioralyte
- Travel insurance
- See my Bro
- Do a final pack of my backpack
It has felt very busy!
I saw this great guide from the White Rose Collection about going on holiday that has some good tips and advice: http://www.whiterosecollection.com/Articles/Holidays-With-An-Ostomy. It also links to this article about the World Assist Alliance, which I never knew about before.
I tried using the SenSura Mio mechanical 2 piece bag last week and I was super happy that it lasted a whole 6 days without needing to be changed (and could have lasted longer as there were no problems when I changed it). I think it's because the mechanical part keeps the bag away from the stoma, helping to reduce potential pancaking. So I ordered a few to take with me - if they always last that long I will only need to change 10 times in my whole trip! The only problem I have is that the opening is a bit more tricky (can be a bit messy) then other bag manufacturers.
If I've forgotten anything I need to do, or if you have any tips on Coloplast bags, let me know in the comments.
Labels:
ileostomy,
ostomy,
stoma,
travel,
travelling
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